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Friday, 8 April 2016

Hearing test and chasing appointments

For this month of autism awareness I'm revisiting early posts on this blog; in these ones, written a couple of weeks after the first suggestion of a diagnosis, I was to be found chasing up appointments and complaining about food intake. Both issues have remained a constant feature of this 'journey' we are on... 

Then I talk about the age-old, very common occurrence of taking children with autism for a hearing test. The reason this happens for most autistic children is that they often tend to struggle with following directions and demands, and so at times it feels as if it must be because they can't hear. It's not the ears that are a problem though, it's the processing information and those pathways from ears to brain.


Spot the Upsy Daisy boots, mentioned below, which were much loved. Sasha developed a fear of slides at some point in the years after this, and will now only sometimes go on baby slides.

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Today I called both the SALT and paediatrician to find out about next appointments, and had to leave answerphone messages for both. The paediatrician's secretary did call me back just before 5pm, but only to say that she knew the report had been written but that she couldn't say when the next appointment would be. I pointed out that the paed had told me I'd see her again in a month, but she sounded confused and unsure of that, saying she is away at half term and so she really didn't think I'd get an appointment before early March. My heart sank and I'm already sure this is the start of lots of brush offs. Still I tried to stay as polite as possible, realise I need to stay on the right side of this lady!

Sasha was in nursery all day today - she was very pleased to see Tamsin and I when we went to collect her, but the fact I had taken her Upsy Daisy boots home and she would have to wear her nursery boots home was a dealbreaker. Eventually we left with no boots on her feet (so she had to sit in the buggy when normally she quite likes walking home). At home it was straight to the kitchen as usual, and refusal of all healthy tea options, so I compromised and let her have one little chocolate to calm her whilst I then warmed her Dora pasta shapes (her favourite), and made her some toast. Am sure she doesn't get snacks as often as she would like at nursery! Hunger is definitely something that sets her off and sometimes she's not patient enough to wait for 'proper' food. Having said that, she will still eat some good foods happily, unlike her big sister who only ever really wants to eat the sweet unhealthy stuff! Ah food, the bain of my life!

So straight after tea Sasha made her way upstairs alone and came to find me holding the summer dress AGAIN (freshly washed now though!). Only slightly worried about what will happen when she grows out of it....


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Today is a great day. Was fretting last night over taking Sasha to a hearing test this morning, as the last time we went for one in December she wasn't interested at all in doing what the lady wanted her to. So this time I explained about our 'maybe' diagnosis, and that I thought it best to just do a physical check as she would be unlikely to 'play ball' (or stack the blocks on poles when she heard a sound in this case ;) ). Typically Sasha then went on to prove me wrong, and played the 'game' perfectly straight away and without any complaints! She heard most of the noises and it was obvious she could and that she knew what she was doing, which was such a great relief. The physical check did show no result instead of a peak, which means her ears are quite waxy and she has glue ear, which in turn I'm guessing could be a contributory factor to her poor speech - or maybe even the cause? Next appointment there in 2 months hopefully - at least now I'm not dreading going back, and Sasha won't remember it as an evil place!

Still no word from speech therapy, so off to chase again. Looking forward to another lazy weekend... :)


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For more information on autism please do visit www.autism.org.uk and for more information on the specific type of autism Sasha has (Pathological Demand Avoidance, or PDA), please visit www.pdasociety.org.uk.

For Day 5 of our story please read: AAA Day Five

For Day 4 readAAA Day Four

For Day 3 readAAA Day Three

For Day 2 read: AAA Day Two

For Day 1 read: A is for April and Autism Awareness




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