Friday 15 January 2010

Day 2 - denial?

So. Where to start today? After an OK-ish nights sleep (considering I have tonsillitis and was awake lots to drink!!) I've awoken with lots of questions still. My head is buzzing. First, to tell people or not? Of course it's nobody else's business, and they don't need to know, but in a selfish way I'd like to say, as maybe people then get to understand a little bit. It's not just her with bad behaviour, or me being a terrible mum. It might explain why I haven't gone out as much with my second child - I rarely do supermarket trips with the girls, have stopped toddler groups with them as youngest wouldn't join in and am careful about where I go and at what times. It is a big thing to me, and of course we know lots of people. I want to just put it on my Facebook status, but am sure that's possibly not the best way to spread this kind of news. A few close friends already know but I feel tired at the thought of telling all the others.

At the same time I'm still really in denial about it. Our little girl is gorgeous and just herself, if she does have this (see, 'if' - not yet fully agreeing) then it's definitely not severe at all... but is that what all parents say?! I was given a great booklet by the paediatrician explaining the basics and what support there is, and one of the first things it says is 'it's not your fault, it's just how they are'. And yet I'm still questioning things I've done, trying to remember back and wondering if it was my fault. I have to admit I almost cried this morning when my eldest told me she loved me, and my first thought was how sad it is that youngest might not actually say those words to me. But then again of course she might - she says lots of things now in her own little language, and several that are recognisable, and that has improved over the past 6 months so why might it not develop more? I guess the uncertainty of what is ahead is something I am now going to have to get used to.

Someone's first reaction when told was a short silence and then 'well that was a quick decision wasn't it?' - i.e. too quick, how would they know when they don't even really know her? I can understand that, not really wanting to believe it, that she's just a normal child that we love very much. And it was a quick assessment, and isn't even definite yet. But I did spend an hour and a half with the doctor, who asked me lots of questions, let our youngest girl play and do her thing, and then tried to interact with her. It dawned on me even more as I was in that room that she doesn't do things 'right' for her age, and having read the booklet since, there's lots in it I can identify with about her behaviour that makes me think it wasn't a wrong, snap decision. But she is maybe on the fringe, her behaviour isn't terrible and doesn't make people stop and stare. She has recently started doing some role playing, like pouring cups of pretend tea etc - so maybe she's still just learning and growing, is just behind with development? See, there it is again, the disbelief.

So on the one hand I'm happy to have a quick decision and hopefully some answers/support/advice at such a young age and without fighting for it, but on the other I'm thinking 'well they can 'label' her as that now, but maybe she will grow out of it and we can forget it later'. Not sure it really works like that.....
So I'm off now to tell a few more people, and I thought I'd start with my local NCT group fellow emailers to see if anybody knows of someone locally in the same situation - as they say, it's good to talk (just not with tonsillitis ;) )